Where can you get multiple sclerosis support and have some shiny days?
Let me be honest, there is no way you can say ” I know how you feel” to someone with multiple sclerosis unless you have been down the same road.
How then do you find multiple sclerosis support if you are patient or a care giver to someone suffering?
Foremost get a good doctor who can listen and they are are from my experience. A doctors’ room should be a place you can have the time to share it all. You should be listened to even if your fears are unfounded. There is no cure and symptoms are varied. You need great support from your doctor, physical therapists and all your health care provider.
What about support outside the doctors’ office?
Lean on a good friend, if they provide a shoulder. A listening friend who stands by you in such moments is a gem. Choose wisely, find someone who is available and trust worthy and you should also be willing to open up and share.
If you have an access to the internet(you have one if you are reading this). Find an internet MS forum. A good one is MSworld.org. This is a forum run by people with multiple sclerosis. They have a magazine for MS and you are allowed to post comments or ask them questions. I think this is a site to bookmark.
Where can one find someone who is also traveling the same road?
If you have not found one, then search online for national society multiple sclerosis society. In their website you can get information on the nearest chapter near you and get involved in their meetings. In the developing world, like Africa such resources are rare so if you are blessed to have one, use it.
It may have no cure for now but with the right support you can have strength to face many more days to come. This applies to all of us too.